Good Times
While y’all oooh and aaah over my mom holding her newest granddaughter (and she is beautiful) I’ll fill you in on some wonderful things happening with Ben.
Tomorrow morning our boy rides the bus to school for the very first time! Of course Nurse Lisa gets the honor of accompanying him since she’s getting [...]
Archive for the ‘Ben's Health’ Category
Posted in Ben's Health, Family Stuff, Posts by Dad, Special People on September 13, 2007 | 8 Comments »
Posted in Ben's Health, Family Stuff, Masterpieces, Posts by Dad on June 4, 2007 | 1 Comment »
Part of The Journey
Using the analogy of being an artist I often paint our family picture in my own colorful and exciting style. Although I’ve shared some difficult moments through the blog I would think that for the most part the “attitude” and aura of this site is fairly positive and upbeat.
I think there [...]
Posted in Ben's Health, Blogged by Ben, Family Stuff on March 14, 2007 | 9 Comments »
Remarkable!
Would you believe the child to the right had surgery today? Sorry it is somewhat out of focus but Ben is dramatically telling us about his hospital visit. To say he’s been rather animated about things is an understatement.
Things could not have gone any better! Thankfully Lisa had to watch the clock while [...]
Posted in Ben's Health, Family Stuff, Posts by Dad on March 13, 2007 | 5 Comments »
Out-Patient Surgery Tomorrow
I just want to remind everyone to keep Ben in your thoughts and prayers tomorrow afternoon. Although it’s a very minor procedure considering the many other things Ben has faced in his short life nothing is ever considered “routine” when it comes to an exceptional child. Ben is scheduled for the [...]
Posted in Ben's Health, Masterpieces, Posts by Dad, Spiritual Stuff, Thoughts on Art on February 27, 2007 | 3 Comments »
PerspectiveAny trained artist will tell you that perspective is a fundamental element of the creative process. Basically (and this is a very basic definition) it is how objects appear from one’s eye in relation to distance and location. For instance, if were to do an architectural rendering I would make darn sure that [...]
Posted in Ben's Health, Posts by Dad on February 26, 2007 | 6 Comments »
Ben Update – Monday
Joan drew the first shift last night per Ben’s choosing. That was unfortunate for Mommy but much good came from it. Those that are closest to us know that Ben generally gravitates to me when he’s not feeling good or wants comfort in facing a new situation. We attribute [...]
Posted in Ben's Health, Posts by Dad on February 25, 2007 | 7 Comments »
Ben Update
Ben started throwing up again today along with the expected seizures. Joan’s worst fear is a shunt malfunction and I’m beginning to believe it just might be true.
There is a “valve” just behind his right ear that only I have the stomach to check and I can’t make it drain like it [...]
Posted in Ben's Health, Posts by Dad on February 14, 2007 | 7 Comments »
Happy Valentines Day!
Here’s the summary:
1. Ben was a trooper and made it until 1 AM giving Joan an extra hour of sleep this morning before having to take her shift to arouse Ben.
2. I ended up awake early anyway to keep Ben somewhat alert while Joan got herself and Jessie dressed. We also checked [...]
Posted in Ben's Health, Posts by Dad on February 13, 2007 | 8 Comments »
Long Nights, Impossible Odds
It’s been a very long day and it’s not over. After another night of some of the strongest seizures yet we made the decision to move forward with a more aggressive approach in getting the awful episodes under control.
With Jenny here today I was able to get some much needed sleep [...]
Posted in Ben's Health, On the Palette, Posts by Dad on February 12, 2007 | 6 Comments »
On the Palette
Brilliant Blue: Interesting night at the Grammy’s yesterday. It was so cool to see The Police back together again. Stewart Copeland and Andy Summers have lived in the shadows of Sting for twenty years now and have never garnered the notoriety they should have for making the band what it was [...]
