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Archive for November, 2006

He-Man Non-Woman-Haters Club

Pardon the interruption of a semi-funny-strange-story but I’ve got a quick report available to say Jessie felt good enough to go out to dinner with the Fluid Guru Too. That left me and the Ben-Ben (as we call him) to do He-Man Non-Woman-Haters stuff.

I just gotta say again that I’ve got the [...]

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Bizarre Entertainment
First off I think there is a virus on our network here at the house. I’m going to blame Crouching Mommy, Hidden Laundry’s husband for this soon-to-be epidemic. It is a known phenomenon, as set in stone as Al Gore invented the internet, that if you visit the blog or website of a [...]

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Blogged by Ben
Greeting to all my internet friends! I hope you are happy, hopeful, and full of smiles! I am. I just can’t help myself sometimes particularly when I’ve had such a great day. My Dad came into my therapy room just a few minutes ago to check on me. I had a very [...]

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Woeful Wednesday

Well, crap! I just found out that I didn’t get the job I was promised. Turns out the person I was supposed to replace improved their work habits over the last week or so and now I’m not needed. I’ve lost about nine days of job-hunting because I was told I had the job. [...]

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Connected

Just yesterday Redneck Mommy said a little blogging “hello” in the comment section to one of our posts over the weekend. I don’t recall at the moment which one so if your curious it shouldn’t take you long to find it.
To the casual reader the comment might be meaningless. Some might’ve passed over the [...]

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Top Ten Stuff About Ben (continued).
We’ll now continue where we left off.
6. Ben can actually talk! This is mainly due to the use of a passy-muir valve that fits over the nose of Ben’s trache although Ben has actually figured out how to clog his trachea airway in such a manner that allows him to [...]

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This has got to be the coolest art project I’ve had the privilege to work on. Telly Turtle Tales is a book written by my mother and illustrated by yours truly! It is a hardback childrens book targetted for kids between the ages of five to eleven. It is the first of what will be [...]

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Blogged By BenHello everyone! I’ve had an awesome week. I am really enjoying my new wheelchair so much that my mom and my sister call it my new “bike.” I guess my reaction has been like Jessie’s when she got her new bicycle.
Thanksgiving Day was great. I still don’t know what it’s like to eat [...]

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The Little Picture is Big (Sometimes)
Montana State 31Furman 7
@#$%^%$##$#@$&(##*$#@
Okay I’m over it. At least we’ve got the next few Saturdays to spend with Ben.

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Summarizing Ben’s Disorder

I honestly have no idea how to summarize Ben’s genetic disorder which is scientifically called Tetrasomy 12p and typically known as Pallister-Killian Syndrome (PKS is what we call it). Georga sort of called me out on this one and I actually got to thinking about how little the readers of this site know [...]

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